PraYing

I was going to start a post about how sick I am about my baby being sick and tell you that he now has Croup, however he is going to get better and there is something else that needs to be said....

Please pray for baby Stellan, I have posted about him in the past here..
http://www.4menandalady.com/2009/04/stellan.html
and here..
http://www.4menandalady.com/2009/03/sick.html

Baby Stellan just turned a year old and spent his first birthday in the hospital in the cardiac intensive care unit in a quickly and devastating onset of his SVT (super ventricular tachycardia (super fast hearbeat)). This time it hit him quick and hard enough that the surgery for another ablation at Boston's Children's Hospital was scheduled a year early than the dr. would have liked. Another ablation means more than likely destruction of the AV node and a pacemaker for life for this little guy.

Well his mom had to two days with Stellan at home from his last hospitalization and then had to fly him to Boston to stay for 4 days to test, weaning heart meds and to do his surgery. On Sunday his mom was told to not give him his morning meds and to have him admitted at lunchtime for complete med weaning but Stellan went into SVT hours after the missed dose and was admitted to the Pediatric Cardiac Intensive Care Unit PCICU.

As of last night they could not break him out of SVT and his heart was beating at a dangerous 270 beats per minute and his blood pressures were awful 43/13 remember normal is 120/80. He made it clear that surgery would not wait until Tuesday so the doctors are scrambling, however now they are having trouble stabilizing him enough to go into surgery. His tiny little heart quit beating this morning but did come back after it was shocked but it still remains in SVT and he is not even close to stable. His mom is there alone and her husband is trying to get a earlier flight. Her twitter messages are painful to read, I have been following her life through her blog http://www.mycharmingkids.net/ since she was 20wks pregnant with Stellan and his heart was in SVT and she was told he would not make it out of her womb alive. Stellan is a fighter but after 5 or more hospitalizations and weeks of SVT it seems as though it is hitting harder and faster, his little body is having trouble keeping up. I am so worried for this baby i have never met and want to fly to Boston and hug his mother. So please drop to your knees and pray for this little man and his family today, I have and will continue.

Not Me Monday!

Yes it is that time again, let's lay our heads on the faded fake leather couch and commence with therapy session #3

When my older boys came back from the pool, I did not make them take off their swimsuits outside on the deck during daylight hours because I didn’t want water spread through the house. I also did not giggle as their white little hinny’s streaked through the house to the back bedroom; I am also not laughing now as I remember the event and write it down, no way, NOT ME.

I did not let Gage taste dark chocolate several times and laugh hysterically at the slurping faces he made (video soon I hope), I know better than to give a baby chocolate, I swear I wouldn’t do that, NOT ME.


When Gage had tons of gas this past week I did not prop him with his stomach across mine and dangle my cell phone in front of him with no intentions of giving it to him, like a tease so he would grunt and strain to reach it therefore expelling gas from both ends, no way, NOT ME, that would be mean.

This weekend I did not gauge whether I needed to bath by how bitter my underarms smelt instead of the numbers of days since the last good cleaning (which was a few nights too many), how disgusting do you think I am, no way NOT ME, I have ALL the time in the world to clean my body daily.

.......NOT ME MONDAY was created by Mckmama at www.mycharmingkids.net, I have been following her for awhile now and if have seen my blog a few months past I have posted a couple times about her 8 month old infant son Stellan, who was not suppose to make it to birth because of uncontrollable SVT (fast heart beat) at 20wks in-utero. He was born and his heart appeared healed, that is until a few months ago when it came back and he spent over a month in the hospital, even air-lifted to Boston’s Children’s Hospital for a risky heart surgery. The surgery only worked partially and they have since been able to control his heart with meds, until now that is, Stellan is doing awful, he has been in uncontrollable SVT for days now, his kidneys are failing, temperature is in the 94’s, extremities are not receiving adequate blood flow and so much more. Mckmama last tweet was that they were again airlifting him to Boston however she is not sure if it is to late. I have never met this baby but feel so close to him and his family (he has 3 brothers and sisters all under 4). Please hug you babies extra close tonight no matter how old they are and say a prayer for baby Stellan, I know I will.

Here is a picture of Stellan during his last hospitalization

I need a favor,,,,,I can only read Mckmama's blog on my blackberry because of work restrictions and awful home internet (shiver, dial up), so I am asking if any of my readers do/could go to mycharmingkids.net and grab the new NOT ME MONDAY button and email it to me, I would love you forever, or just be really grateful. She did not post a NOT ME MONDAY post today for obvious reason but if you look through the archives you will find one from not long ago. Pssst while you are there say a prayer for little Stellan.

Stellan

Baby Stellan is in a risky surgery right now , click here if you did not read my post about stellan http://www.4menandalady.com/2009/03/sick.html

Please throw yourself at Jesus's feet and pray for this little boy and his family. His mom is such a inspiration and this little boy is a fantastic example of the Great Physician, our Lord. You can read Stellan's story at Mckmama's blog http://www.mycharmingkids.net/

Sick

As you might have figured out seeing that this post is titled sick that I was going to post about how angry I am that Gage is sick again however I now realized that I am blessed that he is only a little bit sick. I'll explain...there is another little miracle baby out there who is terribly sick right now. His name is baby Stellan and you can read about his story at http://www.mycharmingkids.net/ I will give you a quick run down, I have been reading his amazing story since last summer when his mom was about 20wks pregnant and told her son was going to die before he was born because his tiny little heart was in SVT (dangerous heart rhythm), then a heart block, and fetal hydrops, you get the point he was a sick baby who was to young to be born and survive. After a long hospital stay and a massive prayer movement his little heart was under control and mckmama was able to carry him close to term, close enough that he was born and able to go home with her, yes you read that right, baby Stellan heart appeared to be healed upon his birth. Well now he is 5 months old and has spent the last week in the PICU (pediatric intensive care unit) at a Children's Hospital because 8 days ago he perfectly functioning heart flipped back into SVT and sometimes V-tach. The Dr.s have not been able to convert his little heart and his body is having to fight so hard but seems to be popping out. He and his mother have taught me so much about, surrendering to God, strength, wisdom, belief, glory, miracles, and did I mention strength? Not physical strength as much as emotional and very much spiritual. I do not know this little boy, his mother, father, two brothers, and his sister but I have to tell you that I am amazed by this family and the prayer movement following them. Mckmama's blog is turned more than a million visitors this week, that is a lot of prayers. Little Stellan is already a miracle in so many ways, he has really brought me closer to God and is a great example of the power of prayer. This little boy has had so much life purpose for so many people in his little 5 months of life and I am in awe. Please drop to your knees and pray for baby Stellan and his family. This little boy has impacted my life and I am on bended knee praying.....

Here is a picture of Stellan fighting for his life.

So yes Gage is sick, probably a cold or an ear infection, but that is it and I am humble.